Multiple Sclerosis
Diagnosed with multiple sclerosis in 2012, doctors believe I probably had it from a very young age. By 2012 the symptoms were not only clear but they didn’t fade away like my younger years. Although MS is a disability I’m not currently disabled. I’m doing everything I can do to prevent that from happening. It’s a daily battle that I fight. The pain which never really stops, tests my strength daily. While I have overcome this pain and deal with it, most others would never know I had anything. It never stops changing and morphing into different spots in my body. MS is not curable but there are some really good treatments to slow it down. I inject my medication once a month.
Cost : $11,000 per month. ( insurance covered)
These are my typical symptoms.
Daily :
- Peripheral neuropathy in my feet. Feels like acid is covering them
- Muscle weakness
- Blurred vision
- Numb fingers ( 3 on each hand )
- Bladder issues
Weekly :
- Stingers ( like a bee sting )
Usually 2 random spots some place on my skin. They sting at the exact same time. You don’t know when the next sting is coming but it usually lasts for about 15 minutes.
- Itching with burning pain under my skin. It feels like spiders crawling and moving around, from my hand to my elbow. If you scratch, it will become worse. Never in both hands at the same time. It lasts 30 minutes.
- MS hug
Feels like I’m wearing a belt around my torso. Not painful.
Most people and family and friends will never understand what I go through with this disease. I don't let that bring me down. I still work and I still write. I still play the drums.
I’ve never stopped researching how to rid the symptoms. For me it’s with my brain. The same place that’s sending wrong messages to different parts in my body. If anyone needs help or has a question, I will always respond. Please use the contact page or
